About Cure for Carson

About Carson

Carson is 5 years old, and as you can see from his pictures on this page, he is a beautiful, happy child. In July 2006, just around his 3rd birthday, Carson was diagnosed with Duchenne Muscular Dystrophy.

What is Muscular Dystrophy?

Muscular Dystrophy is a genetic, degenerative disorder primarily affecting voluntary muscles. There are more than 40 types of Muscular Dystrophy (MD). Duchenne Muscular Dystrophy (DMD) is the most severe form of the condition. Symptoms are generalized weakness and muscle wasting first affecting the muscles of the hips, pelvic area, thighs and shoulders. DMD is typically diagnosed between ages 2-6. DMD eventually affects all voluntary muscles, and the heart and breathing muscles. There is no cure yet. Little boys are usually confined to wheelchairs by age 7-10. Survival is rare beyond the early 20s.

Research

Research into the causes and cures for Duchenne Muscular Dystrophy has leaped forward in the past two decades, helping the many children who have this disease. There are 3 different forms of Duchenne Muscular Dystrophy. Carson has the rarest, which is caused by a duplication of the Exxons in his DNA. Being the rarest form of the disease, it gets the smallest portion of available research dollars. But progress is being made, and researchers are close to finding a breakthrough treatment. To the little boys like Carson who have the rarest form of Duchenne Muscular Dystrophy, it is critical that the breakthrough happen NOW, before their disease progresses further.

Our Goal

Our goal is to put research for Duchenne Muscular Dystrophy into high gear. We are working with the leading experts in Duchenne Muscular Dystrophy at the University of Utah to raise money to fund this important research.

It takes $50,000 (only $50,000!) to fund a full year of research, and we aim to raise that money! We ask you to help us reach our goal.

Please make a tax-deductible donation to help young boys like Carson receive treatment for this devestating disease. Gifts of any size are deeply appreciated! Please be generous!

Make out your check to University of Utah Department of Human Genetics and mail it to Cure for Carson, P.O. Box 533, Riverton, UT 84065-0533.

And, remember to ask your employer if your company has a matching gift program!

The University of Utah Department of Human Genetics is a US 501 (c)(3)Non Profit Organization, Tax ID 87-6000525.

Thank you!